Caregiving Resources

The following library is curated by our members to aid organizations in supporting the family caregivers they employ.

If you have any questions for the Coalition, please submit an inquiry through our contact form and a member of our team will get in touch with you.

Button with text that reads Get in Touch

The Massachusetts Caregiver Coalition Documents:

The Massachusetts Employer Toolkit and Caregiver Survey:

Coalition Webinars:

Reports:

  • Supporting Employee Caregivers Starts with Better Data (April 2022) – The Harvard Business Review reports that most employers remain in the dark on how many of their workers are caring for others at home and provides four actions business leaders can take to close this data gap. The authors note that companies must collectively begin tracking caregiving status in order to design targeted interventions to retain and improve the productivity and engagement levels of their caregiving employees.

  • Shining a Spotlight on Caregiving: Employer Practices Through a Policy Lens (November 2021) - The Global Coalition on Aging’s new report links 21st century employer benefits to a new social contract for how to meet growing employee needs in our aging society. The report, sponsored by Bank of America, underscores the sensitive, challenging, and difficult balancing acts between work and care. 

  • Caregiving in a Diverse America: Beginning to Understand the Systemic Challenges Facing Family Caregivers (November 2021) -  This report by the National Alliance of Caregiving (NAC), through sponsorship by Amgen, Inc. and with support from the Diverse Elders Coalition and in partnership with the National Minority Quality Forum, highlights significant disparities in support, caregiving intensity, health, and financial impacts among caregivers of color, LGBTQ caregivers, as well as caregivers across different income brackets and geographical areas.  The report expands on the diverse experiences of family caregivers and provides important policy recommendations to help aid family caregivers in their important tasks.

  • Working While Caring: A National Survey of Caregiver Stress in the U.S. Workforce (Sep. 2021) – The Rosalynn Carter Institute for Caregivers (RCI), released Working While Caring: A National Survey of Caregiver Stress in the U.S. Workforce. The survey revealed that one-in-five full-time workers is a caregiver, providing care on a regular basis for a family member or friend who is aging, has a serious illness, or has a disability. Many must go to part-time status or quit altogether due to caregiving responsibilities.

  • Lessons From the Workplace: Caregiving During COVID-19 (Oct 2021) – A cultural shift writ large, or at least an opening for it, came calling in early 2020 when COVID-19 turned the world—and the workplace--on its head. As millions fell sick and workers lost crucial supports—school, daycare and eldercare, home health assistance, babysitting grandparents—caregiving became almost everyone’s crisis. Employers couldn’t staff shifts. Employees (largely women) reduced their hours or abandoned jobs in staggering numbers so they could care for loved ones.
  • Recognize, Assist, Include, Support, & Engage (RAISE) Family Caregivers Act: Initial Report to Congress (Sep. 2021) - On September 22, 2021, the RAISE Family Caregiving Advisory Council released its initial report to Congress. This report outlines the challenges faced by family caregivers, federal programs currently available to support them, and provides 26 recommendations for better supporting family caregivers.
  • Recognize, Assist, Include, Support, & Engage (RAISE) Family Caregiving Advisory Council Report – Released in September 2021, this report outlines the challenges faced by family caregivers, federal programs currently available to support them, and provides 26 recommendations for better supporting family caregivers.

  • Cost of Caregiving to Massachusetts Employers - The increased turnover, absenteeism, and presenteeism cost employers in Massachusetts an estimated $982 million per year.
  • The Caring Company - The report offers recommendations for employers about ways that they can develop a culture of caregiving to support their employees and alleviate associated costs.
  • Caregiving in the U.S. 2020 - The AARP/The National Alliance of Caregivers Report found that that six in 10 caregivers report working while caregiving and 61% have experienced at least one work-related impact. One in 10 working caregivers have had to give up work entirely or retire early to fully handle their caregiving responsibilities.
  • Care.com: Future of Benefits - A HR Guide to what’s next for employee benefits. While employers had seen statistics demonstrating that juggling work and care responsibilities adversely affects productivity, retention, absenteeism, and employee health, the pandemic has brought that to the forefront with unprecedented clarity.
  • AARP Family Caregiving: Supporting Employee Caregivers During the Pandemic - The AARP Family Caregiving team developed a list of action steps employers can take during the COVD-19 pandemic to continue supporting their employees who are caregivers through this unique time. 
  • EMD Serono Global Carer Well-Being Index - The COVID pandemic has caused substantial disruption for unpaid carers around the world, in ways that put their economic, physical and psychological well-being at risk.

Research:

COVID-19 Specific Resources:

Articles:

Other Resources:

American Cancer Society